A SIX-year-old boy with a rare bowel disorder will see his Disney dream realised this weekend after travelling in style.
Jamie Stones, of Greengates, who suffers from short bowel syndrome (SBS), has had 22 operations in his short life so far and faces a future of further surgeries.
He was born at 27 weeks and was initially diagnosed with Necrotising Enterocolitis (NEC), an inflammation of the bowel that damages the bowel.
This condition usually occurs in around three in 10,000 babies.
This led to him suffering from SBS, which is rarely due to the complete dysfunction of a large part of the bowel.
He underwent his first surgery at just three weeks old, weighing just 2lbs and was given only a ten per cent chance of survival.
Jamie, who only has 20cm of his bowel remaining, is drip-fed for 12 hours at home each night between 7.30pm and 7.30am.
Total parenteral nutrition (TPN) drips through a needle or catheter placed in his vein for ten to 12 hours. TPN is used for patients who cannot or should not get their nutrition through eating.
He faces a major operation in the summer called a serial transverse enteroplasty procedure (STEP), where the bowel is cut and stapled in a zig-zag pattern to narrow and lengthen it. Jamie will then face a three-month recovery spell.
But he was given a treat yesterday as he travelled in style for a four-day trip to Disneyland Paris.
He was picked up by a limousine with his family outside Parklands Primary School, Thorp Edge, where he is a pupil.
He went onto Paris with mother Michelle, father Adam, brother Lewis, 14, and sister Codie, 8. But his other brother, Thomas, 17, has not gone to Paris.
Friends, family and an online donation page raised £1,420 which the family will use for spending money.
Jamie's Disney dream was granted by Starlight, an organisation which grants wishes for seriously and terminally ill children. He was nominated for this trip by Mrs Stones' friend Catherine McGinty.
Mrs Stones, 33, said: "He is a miracle baby.
"To look at him you wouldn't know anything was wrong with him.
"He is a fun loving, heart melting little boy.
"He will have to have operations through his life. It's just been horrendous. We call him our little superhero. He takes everything on his chin.
"We just don't know about his future at the moment.
"It does take its toll on all of the family. The other kids do miss out.
"Jamie has always loved Mickey Mouse. Now he's going to meet his hero. It's going to be a trip of a lifetime. He was very excited and was counting down the sleeps until we went.
"This trip is so important to make fun memories for the family.
"We wanted him to have this trip before he has his major operation in the summer.
"He spent the first year of his life in hospital and had between eight or ten operations."
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